
The Butterfly Child
Jonathan Pitre lives with epidermolysis bullosa, a genetic condition that leaves his skin so fragile that ordinary friction can tear it like tissue paper. The film follows his daily routine, including a bath and bandage-changing process that takes hours and causes him constant pain, alongside interviews with his mother and caregivers about managing wounds that never fully heal. Footage shows the physical toll on his hands and body, the layers of dressings required just to let him move through a day, and the toll the illness takes on sleep and ordinary activity most people never think about. Rather than dwelling only on suffering, the short also captures Jonathan's own voice and outlook, showing how he and his family adapt to a condition with no cure. It is a brief, direct portrait of a rare disease told through the boy living with it rather than through medical narration alone.